People say all kinds of things to me and my wife as parents of an autistic son, and they mean well.
People would sometimes say to me, in public, or in therapy waiting rooms where there’s a lot of interaction with parents and they would say, you’re a saint. And I would just think, well, Jesus Christ. What am I supposed to do, beat the [BLEEP] out of him? What else would you do? Well, we have to take a lot of antidepressants. That helps.
God bless medication. People would often say, I couldn’t do what you’re doing. I know when people would say that, I mean, it’s really a compliment. But it would sometimes though, feel like, yes, you would. Unless you’re really a [BLEEP] person and not cut out to be a parent, you would be doing the same thing. The only difference is, we have to do it. It always felt like a little whiff of this crap, like God never gives you more than you can handle.
You just want to kick those people in the teeth don’t you?
If that sounds harsh, here’s what it’s like for us….
The social model… is important in accessibility considerations because it recognises the importance of the context of the users and supports the view of accessibility as a relationship property; in the case of web accessibility the relationship being between the diversity of users and the web resource or application.Read Models of Disability and their Relation to Accessibility
- 5 Good News Stories from CSUN 2012
- CSUN12 Favorites by Dennis E. Lembrée.
- A Busy Week at CSUN 2012 by Lee Huffman.
- CSUN 2012 International Technology & Persons with Disabilities Conference Video by Yahoo! Accessibility
- CSUN 2012 Recap by John Foliot
- CSUN 2012 Conference by Hubert Figuière
- CSUN Quick Review by Dennis E. Lembrée.
- CSUN12: The ultimate user experience by Laura Legendary.
- Final Thoughts from CSUN by Lakeside Center for Autism.
- The Tribe Wants You by Karl Groves.
- #csun12 Twitter statistics and content analysis by @maccymacx by Makayla Lewis.
- A Web Standards & UD Approach for Access (PowerPoint slides) by Howard Kramer
- Accessibility & Software Development Lifecycle by Preety Kumar.
- Accessibility is the New Black (blog post) by Wendy Chisolm and Elle Waters
- Accessibility of HTML5 and Rich Internet Applications – CSUN 2012 Workshop Material (online slides) from Hans Hillen and Steve Faulkner. Part 1 available on Slideshare
- Accessible Android PDA: Technical Challenges (website) by Keith Creasy.
- Accessible E-Learning at German Universities (online presentation) by Björn Fisseler
- aOSN-cp Model to Assist Social Media Change (blog post) by Makayla Lewis
- ARIA Widgets by Todd Kloots.
- ASurvey: An End-to-End Accessible Survey Tool (Slideshare slides) by Chris Gaulin, Jennison Asuncion and Michael Sanford.
- BS8878 Web Accessibility Code of Practice (Slideshare slides) by Léonie Watson.
- Captioning Strategy & the Accessible DQPlayer (PowerPoint) by Glenda Sims and Donald Evans.
- Case-studies of Implementing BS8878 (Blog and Slideshare) by Jonathan Hassell. Also see Building accessibility strategy into the culture of an organization: find out more about BS 8878 at CSUN 2012 (blog post).
- Creating an Accessible Web Dropdown Menu (demo page) by Terrill Thompson
- Crowdsourcing the Web Accessibility Problem (PowerPoint slides) by Sina Bahram
- CSUN Opening Keynote with Sandy Plotin, Mike Paciello, Geri Jewell, and Sheryl Burgstahler
- Department of Labor and Accessible Workplace Technology video with captions by Kathleen Martinez
- Developing an Accessible App for Android (website) by Keith Creasy.
- DVX: The Descriptive Video Exchange Preview (blog post) by Joshua Miele.
- Does accessibility have to be perfect? (blog post) from Lisa Herrod, Sarah Lewthwaite, Kath Moonan, Henny Swan and Léonie Watson.
- Eating the Elephant by Elle Waters and Wes Dillon.
- http://danson.misericordia.edu/Workshops/Workshops.php”>EqTDs: Make Alternative Text More Functional (HTML) by Denis Anson.
- Getting the Most out of Your Accessibility Expert (Slideshare slides) by Olivier Nourry.
- Harmonizing WCAG Conformity Assessment Method by Denis Boulay and Jean-Pierre Villain.
- How to Build an Enterprise A11Y Process video with captions by Joshua Brickman and Charlie Pike.
- HTML5 & WAI-ARIA Forms-jQuery Validation (Powerpoint slides) by Paul J. Adam
- iLearn: Using the iPad for Children with ASD (blog and Prezi presentation) by Vina Sargent, Mari Therrien, and Michelle Therrien.
- HTML 5 Accessibility video with captions or Slideshare slides by Richard Schwerdtfeger, Marco Zehe and Steve Faulkner.
- iAccessibility: Mobile Freedom for All (online slides) by Paul J. Adam
- Institutionalization of Accessibility (blog post) by Pooja Nahata
- Law is a Key to Web Access by Lainey Feingold
- M-Enabling: New Paradigm & Persons With Disabilitiess (Powerpoint slides) by Susan Mazrui, Axel Leblois, Francesca Cesa Bianchi, Mike May, and Steve Jacobs.
- Making the Mobile Web Accessible (Slideshare slides) by Henny Swan.
- Media Accessibility: International Standards (Keynote Slides) by David Errington and Robert Pearson.
- Multiple Perspectives on Interaction Design for Older People (blog post) by Sarah Lewthwaite
- Overview of Assistive Technology by Kelly Fonner and Scott Marfilius
- Panel Discussion on Accessibility of U.S. Transportation System video with captions by Richard Devylder, Gary Talbot and Blane Workie.
- PAVIP, the Public Transportation Solution (PDF) by Stephan Knecht
- PDF: Accessibility and SEO (Slideshare slides) by Vincent François.
- Peer to Peer Accessibility in Social Networks (blog post) by Sarah Lewthwaite
- Prioritizing Remediation-Accessibility Issues (Powerpoint slides) by Karl Groves.
- Reading Books on an iPhone (PDF Slides) by Jule Ann Lieberman.
- Reliability: ADA-CAT Assessments & Compliance (HTML, Keynote and PowerPoint slides) by Denis Anson.
- Social Media Accessibility: Where Are We? (Slideshare slides) by Vincent François and Denis Boudreau.
- Support an Accessible Social Media Campaign by Dylan Barrell.
- Technology and Emergency Preparedness for People with Disabilities Panel video with captions by Richard Devylder, June Kailes and Marcie Roth.
- The Trinity of Inclusive Web Development (Slideshare slides) by Denis Boudreau.
- The U.S. Access Board – Public Hearing video with captions by Tim Creagan.
- The Yahoo Social Accessibility Lab (Slideshare slides) by Nate Ebrahimoon.
- Usability Testing for People w/Disabilities Video with captions or Slideshare slides by Kathleen Wahlbin and Mary Utt.
- Wave 5 Showcase (online slides) by Diogenes Hernandez, Tom Galloway and Jared Smith.
- WCAG 2.0-How Will Compliance Testing Change? by Barry Johnson.
- Web Accessibility: the Role of the Law (blog post and Slideshare slides) by Lainey Feingold and Linda Dardarian
- What’s New in ZoomText 10 (YouTube video).
- Windows 8 and Window-Eyes: The Next Frontier Podcast (mp3) by Jeremy Curry.
- Yesterday’s Future by Kel Smith and Lisa Domican
- YouTube: Captions for 21st Century & Beyond (blog post) by Ken Harrenstien.
- ZoomText, Dragon, High Contrast, and Web Design (online slides) by Jonathan Whiting
- CSUN Tweetup Photo Booth
- CSUN pictures shared on Twitter.
- CSUN12 Flickr set (with photo descriptions) by Dennis E. Lembrée
- CSUN 2012 Flickr set (with photo descriptions) by Ted Drake
- CSUN 2012 Flickr set (with photo descriptions) by Cindy Li
Blog and News Coverage
- Designed for the Disabled by Mike Freeman.
- Google and Accessibility. What’s the plan? by Joe Dolson.
- How we could build a Body of Knowledge for Web Accessibility by Olivier Nourry.
- Thoughts From Day One of CSUN by Lakeside Center for Autism.
- The 27th Annual Technology and Persons with Disabilities Conference from the Accessible Insights Blog
- We need to have a talk with marketing by Joe Dolson.
- Jennison Asuncion talks about the CSUN Conferences.
- Interview with Tim Kreagan, Senior Accessibility Specialist, United States Access Board
- Interview with Steve Faulkner, EU technical Director, Paciello Group
- Interview with Laney Feingold & Linda Dardarion, Law office of Laney Feingold & Attorney
- Interview with Geri Jewell, Actress, Comedian, Author
- Interview with Wes Johnson, President of Accessible San Diego
- Interview with Brian Landrigan, Director of Sales and Marketing, The Paciello Group
- Interview with Scott Moore, VP of Marketing, AI Squared
- Interview with Harry Murphy, Founder of the CSUN conference
- Interview with Dr. George Kerscher, Daisy Association and his dog Mikey
- Interview with Whitney Quesenberry, Whitney interactive Designs, LLC
- Interview with Alex Leblois, Executive Director, The Global Initiative for Inclusive ICT’s
- INterview with Sandy Plotin, Managing Director, Center on Disabilities
- Interview with Klaus Miesenberger, Vice Head of Institute, Institute Integriert Studieren
- Interview with Richard Tapping, Vice President, North American Sales, Freedom Scientific
- Interview with Clayton Lewis, Scientist in Residence, Coleman Institute & Professor of Computer Science, University of Colorado
- Interview with Rich Schwerdtfeger, SWG Accessibility Strategy, Accessibility Architecture, IBM Emerging technologies
- @AccessTalk Podcast 5: a look back at the recent CSUN Conference
- CSUN Audio from Blind Access Journal
- Allison Sheridan – A Sighted Geek’s Adventure in Computers and Accessibility
- Freedom Scientific Focus 14 Blue Braille Display
- Kevin Chao on Moving Accessibility Forward
- Milestone 312 Accessible MP3 Player from Bones, Inc.
- Nancy Miracle – Digit-Eyes Bar Code Scanner for iOS
- Perkins Products Mini Braille Display
- ScripTalk Accessible Prescription Labels from En-Vision America
- CSUN12 Audio from BlindBargains
- A 49-minute Demo of the BraillePlus Second Generation
- A Demo of the LookTel Object Recognizer
- A Folding Desktop Magnifier from Baum
- A Recap of ZoomText 10 and the iLoView Video Magnifier
- A Unique iOS Bluetooth Keypad from Mobience
- A Windows 7 Braille Laptop
- Ambutech’s Premium Canes
- AbiSee Refreshes Eye-Pal Line
- Captioning Radio Programs with Braille for the Deaf-blind
- Controlling a Traffic Light from your Phone
- DocumentAccessibility.com Helping with Section 508 Compliance
- Dolphin is No Longer the Hal Company
- Equal Access to Textbooks with STEPP
- HumanWare Talks Braille Displays, mPower PDF Support, and a new SmartView
- Introducing A Desktop BookPort from BlindBargains
- Knowbility Offering Cash for Website Testing
- LookTel Recognizer for iOS
- Need help Getting the Accommodations you Need at Work? Ask Jan.
- Optelec’s Latest HD Magnifier
- Read the Web Later, or Better with Capti
- Remote Braille Learning with BERT
- The Latest Perkins Braille Display and Next Generation Brailler Take 2
- The Latest with Duxbury for Windows, and Duxbury for the Mac?
- This Ain’t your Grandma’s Blio
- Highlights from CSUN 2012 part 1 and Highlights from CSUN 2012 part 2 (Show notes from part 1 and show notes from part 2 from ViewPoints
- Tech Access Weekly: CSUN & the iPad
- Women of CSUN12 from WebAxe (Women of CSUN 2012 Transcript)
Events and Meetups (Formal and Otherwise)
- CSUN Tweetup Thursday, March 1st at 6:30PM in the Elizabeth Ballroom (2nd floor), Manchester Grand Hyatt.
- SS12: Code for a Cause Finals Saturday, March 3rd at 9:00AM in the Elizabeth Ballroom A Suite (2nd floor), Manchester Grand Hyatt.
- RESNA Standards Committee on Cognitive Technologies Wednesday, February 29 at 7pm at the CSUN Cyber Café, located on the 2nd floor in the registration area.
Getting Ready and Attending the Confernece
- Tips for the CSUN Conference Newbie from Deque
- Let others know you are attending the event on Lanyrd, Facebook or Linkedin.
- Welcome to San Diego, CSUN 2012 Attendees! Includes some specials for CSUN attendees from the Yahoo! Accessibility Blog
- Accessible San Diego is non-profit information center for travelers with disabilities. Check out the site for walking tours of Seaport Village.
Vendors, Sponsors and Exhibitors
- Official directory of exhibitors
- Sponsors of the 2012 International Technology & Persons with Disabilities Conference
Following the Conversation
- Be sure to follow the conversation using the #CSUN12 hashtag that you can follow on Twitter, Easy Chirp, your favorite Twitter client or one of the options listed below.
- You can also follow the #CSUN12 conversation at Twazzup, hashtags.org, TwitterFall or HashParty.
- Visualize the conversation at hashtagrify or the archivist.
- View images or videos from Topsy.
- There are some other conversations you may also be interested in: #a11ysociety hashtag (the need for a professional accessibility society), and #wacol (web accessibility community collaboration), and #road2csun (promoting accessibility on the way to CSUN).
Official Conference Stuff
- At the official conference website you’ll find the list of sessions, (and addendum), list of exhibitors, events open to the public and all kinds of other official information.There is also a Conference Mobile Site.
- Conference Program in HTML, ePub and DAISY (Thanks DAISY Consortium!)
Vendor News, Announcements and Press Releases
- Adobe at CSUN 2012
- Code Factory will once again be at CSUN
- COTELCO and IDPP Participate in 27th Annual CSUN Conference
- Deque Introduces Worldspace Sync Suite at CSUN
- Freedom Scientific at CSUN
- G3ict Special Sessions @ CSUN 2012
- IBM sessions at CSUN 2012
- Google: Understanding accessibility at CSUN 2012
- IDPP Participates in 27th Annual CSUN Conference
- Microsoft Educational Sessions at CSUN 2012
- Perkins announces new mini braille display and brailler
- RESNA Members Present at CSUN Conference
- Sendero Activities at CSUN 2012 (including an application for power users to be considered for a design meeting)
- The #a11ysociety hashtag is a discussion around the need for a professional accessibility society.
- The #wacol is a discussion around web accessibility community collaboration.
- The #road2csun is the hashtag about an epic pre-conference trip promoting accessibility.
- The official CSUN Conference Twitter account is @CSUNCod and you can contact the hotel host at @ManchGrandHyatt.
- Tip: Sign up for Hyatt Gold to get free wifi. (Wifi not available in most places. Speeds guaranteed to be slow.)
- 3 must-have apps while attending CSUN 2012 from the Yahoo! Accessibility Blog
- A11y Buzz
- Websites for converting files to accessible formats- Sensus Access and The SCRIBE Project.
- Android: Designing for Accessibility
Not Attending?Besides following the conversation online, Jeffrey Stark has offered to answer your questions from the conference or you might consider following the lead of this “Wish we could be at CSUN” commiseration event” in Canberra Australia.
Thank you!Thank you to the following people for sending me tips and resources, please remind me if I forgot you: Jared Smith, @blindbargains, Mika O Pyyhkala, Jennison Ascunsion, Jon Hassell.
You may feel like you know it when you see it, but do you know exactly what autism is? Lisa Daxer writes in her post titled How to Diagnose Autism, “autism really is a complicated subject”. You should take her word for it, Lisa has Asperger’s syndrome. In the post shed does an incredible of outlining some differences “between autistics and neurotypicals” in three categories:
- learning and cognition
- sensory processing
In the end she acknowledges that:
… Unfortunately, it’s just not possible. Autism is a complicated diagnosis to make and a complicated subject to study. The more traits you have, the more likely you’re autistic.
In general, a diagnosis of autism is made when someone determines that you have a lot of autistic traits, and that these traits mean you need help with something, and that a diagnosis would help. But defining autism–the essential cognitive style–is a project I think we’ll take decades to finish.
If you’re not already following Reports from a Resident Alien, take a moment to do so now, here are just a few of my favorite posts that have helped me to better understand what it means to have a disability:
- Autism and Disability
- I am not Normal
- Not all Differences are Disabilities; but all Disabilities are Differences.
- Joining the Disability Rights Movement
- The Right to Complain
Must watch video for anyone who knows anyone with a disability:
Read by People with Disabilities
Read by a Narrator
Throughout history, people with physical and mental disabilities have been abandoned at birth, banished from society, used as court jesters, drowned and burned during The Inquisition, gassed in Nazi Germany, and still continue to be segregated, institutionalized, tortured in the name of behavior management, abused, raped, euthanized, and murdered.
Now, for the first time, people with disabilities are taking their rightful place as fully contributing citizens.
The danger is that we will respond with remediation and benevolence rather than equity and respect. And so, we offer you:
A Credo for Support
Do not see my disability as the problem.
Recognize that my disability is an attribute.
Do not see my disability as a deficit.
It is you who see me as deviant and helpless.
Do not try to fix me because I am not broken.
Support me. I can make my contribution to the community in my own way.
Do not see me as your client.
I am your fellow citizen.
See me as your neighbour.
Remember, none of us can be self-sufficient.
Do not try to modify my behavior. Be still & listen. What you define as inappropriate may be my attempt tocommunicate with you in the only way I can.
Do not try to change me, you have no right.
Help me learn what I want to know.
Do not hide your uncertainty behind “professional” distance.
Be a person who listens and does not take my struggle away from me by trying to make it all better. Do not use theories and strategies on me.
Be with me.
And when we struggle with each other, let that give use to self-reflection.
Do not try to control me. I have a right to my power as a person.
What you call non-compliance or manipulation may actually be the only way I can exert some control over my life.
Do not teach me to be obedient, submissive and polite.
I need to feel entitled to say No if I am to protect myself.
Do not be charitable towards me.
The last thing the world needs is another Jerry Lewis.
Do not try to be my friend. I deserve more than that.
Get to know me, we may become friends.
Do not help me, even if it does make you feel good.
Ask me if I need your help.
Let me show you how you can assist me.
Do not admire me.
A desire to live a full life does not warrant adoration.
Respect me, for respect presumes equality.
Do not tell, correct, and lead.
Listen, support, and follow.
Do not work on me.
Work with me!
In Memory of Tracy Latimore
Written by Norman Kunc and Emma Van der Klift
Copyright 1995 Norman Kunc & Emma Van der Klift
I’m attending the Association of Higher Education and Disability (AHEAD) Conference in Seattle this week. Many of the sessions are typical fare for a disability conference, but I’ve found a strand of conversations pushing the conversation beyond where many disability advocates in attendance are comfortable. I love it.
The conference brings together professionals from disability service offices that provide support to students with disabilities in colleges and universities.
Here are some of the questions that were asked:
- How do disability simulations used for disability awareness reinforce existing power structures and negative stereotypes?
- How do disability service offices act as the gatekeeper rather than door opener?
- Why is so much time spent evaluating and diagnosing disability that could be spent on creating more accessible environments for everyone?
- How is the disability rights movement similar and different from movements of other oppressed groups?
There was a great discussion on the power of language where the power of words was affirmed, but Alberto Guzman put the language discussion into perspective when he said, “If the goal is to be politically correct, then we should just forget about it”.
There is tremendous value in examining our own ideas and perceptions. There was a palpable energy felt as as ideas and attitudes were challenged and changed. I will leave this conference with a renewed sense of purpose and direction in the work that I do.
The presentations from the AHEAD conference can be found on the AHEAD Conference website.
Presentation from the 2011 CSUN Technology Conference.
Presenters: Anne Taylor, the Director of Access Technology at the National Federation for the Blind and Michael Barber, Michael Barber, President National Federation of the Blind of Iowa
Anne began by discussing the advantages and disadvantages of mainstream devices such as the iPhone and iPad versus dedicated devices such as the The Braille Sense Plus, BrailleNote, Pac Mate, and Sendoro GPS devices.
It may be unfair to critique Apple and their iOS when they are doing so much in the area of accessibility, but as the current market leader and with their accessibility efforts they are the only experience that can even be compared with dedicated notetaker devices.
Advantages of Dedicated Devices
- You don’t have to worry whether functionality is accessible or not, it’s going to be accessible.
- More tuned into the needs of the blind community.
- Accessibility is the bread and butter for those companies.
- More training agency resources in the industry focused on the dedicated devices (than iOS devices).
Disadvantage of the Dedicated Devices
- They are more expensive to purchase and users who are blind have less buying power than the sighted population.
- More expensive to maintain- changing the battery in one (unnamed) device cost $400.
- Lag time in development compared to mainstream technology.
- Lack of versatility in what you can do (there’s no app for that).
- Tools are not as powerful (i.e. advanced functions in Microsoft Word).
Advantage of Mainstream (iOS) Devices
- More affordable.
- They keep pace with technology better (i.e. using iOS devices to control appliances).
- Wide availability, better distribution channels.
- Less expensive to maintain.
- Great compatibility with other mainstream devices- one device for the sighted and the blind.
- Easier to find support from other people who have similar devices.
Disadvantages of Mainstream (iOS) Devices
- The accessibility documentation and training can be difficult to find.
- Accessibility is great on iOS devices and is woven into Apple’s culture, but it is still a secondary feature.
- Accessibility provides access to text, not braille. Third-party soulutions are available, but support for Braille integration is still weak.
- Less understanding of the needs of the blind community.
- Individual applications may or may not be accessible.
Anne asked whether or not mainstream devices were able to adequately replace dedicated device. While some blind users already have already replaced their dedicated devices for a mainstream device, the needed functionality still isn’t there yet for many users.
Other Resources Mentioned
As with any disability statistic, it depends who you ask. Here are some statistics from different groups with a brief summary at the end:
From the 2008 American Community Survey (ACS):
In the year 2008, an estimated 3.5 percent (plus or minus 0.03 percentage points) of non-institutionalized, male or female, all ages, all races, regardless of ethnicity, with all education levels in the United States reported a hearing disability.
In other words, 10,393,100 out of 299,852,800 non-institutionalized, male or female, all ages, all races, regardless of ethnicity, with all education levels in the United States reported a hearing disability.
This statistic was gathered in response to the question:
“Is this person deaf or does he/she have serious difficulty hearing?”
Source: The percentage of non-institutionalized, male or female, all ages, all races, regardless of ethnicity, with all education levels in the United States reported a hearing disability in 2008 (filter by Disability Type, “Hearing Disability).
2000-2006 National Health Interview Surveys
In response to the question:
“Which statement best describes your hearing without a hearing aid: good, a little trouble, a lot of trouble, deaf?”
83.7% of adults in the United States report “Good hearing”, 12.9% report “a little trouble hearing” and 3.3% of people report themselves as “Deaf or a lot of trouble hearing”.
From the 2001 Survey of Income and Program Participation (SIPP)
About 8,000,000 people (3.7%) over 5 years of age are hard of hearing (that is, have some difficulty hearing normal conversation even with the use of a hearing aid).
There you go, according to these three survey’s (or at least someone’s interpretation fo the survey data) somewhere in the neighborhood of 3 to 4 percent of people can be classified as “hard of hearing”. Each of the studies goes into more detail on what that means and how their data was gathered.
Something I am missing? Please leave a comment and let me know.
I am at the TASH conference this week and watched a pre-screening of the movie Wretches and Jabberers directed by Gerardine Wurzburg. The movie follows the worldwide travels of Larry Bissonnette and Tracy Thresher who both have autism. Growing up, both Larry and Tracy were limited in their speech and seriously misunderstood until as adults they learned to communicate through typing. Now they have travelled around the world and are doing incredible work as advocates to help others presume competence when they meet a person with a disability.
They are still working distribution, but it will probably be available on video sometime next summer. Here is my favorite clip: